Never heard of childhood dementia before, and apparently many people were like me before watching the video, so I am spreading awareness.

  • un_aristocrate
    link
    fedilink
    Français
    arrow-up
    14
    arrow-down
    1
    ·
    6 months ago

    I have never heard of childhood dementia and a quick Google search seems to point only on this website and other sites with exact same wording.

    The numbers they give seem impressively high for a disorder that is barely documented on the internet.

    The symptoms are basically normal children behavior.

    This looks like a scam design to scare parents into buying something.

    It might look like this by accident but I would do a lot more research if I were to donate or take their advice.

    • Diabolo96@lemmy.dbzer0.comOP
      link
      fedilink
      arrow-up
      3
      ·
      6 months ago

      Yeah, I did some research and it’s really weird. The majority of sites that talk about it are Australian and it’s barely, if at all acknowledged anywhere else in the world. I found some sites that seems legit:

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3943077/

      https://www.adelaide.edu.au/newsroom/news/list/2023/09/18/devastating-causes-of-childhood-dementia-revealed

      https://www.alzint.org/news-events/news/shining-a-light-on-childhood-dementia/

      https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10486052/

      https://www.dzne.de/en/news/background/childhood-dementia/

      https://rareportal.org.au/rare-disease/childhood-dementia-disorders/

      https://rarediseases.org/organizations/childhood-dementia-initiative/

      I think that maybe it wasn’t recognized before due to how rare and weird it is, like ptsd was, but I can’t say for sure if it’s not a scam.