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The original was posted on /r/cfs by /u/J_Linnea on 2024-09-20 15:02:48+00:00.


I live in Sweden and our National Board of Health just came out with new guidelines for healthcare workers about long-covid and ME that recommends excercise (basically GET). There has been a lot of pushback but it’s so frustrating. A major newspaper just published an article calling long-covid and ME “cultural diseases”. Calling us a group of 40 year old women just looking to have a diagnosis.

There is so much science now about the physical symtoms. Why can’t they just read it? Must they kick us and drag us all through the mud when we’re already down?

It just gets to you. Will my doctor read that? Will my colleagues? My mother in law? Will they believe them or me? It sucks.